Record View: NHS must deliver the best care for people with rare diseases, ILLNESS strikes most people at some stage in their lives.
Usually, whatever is wrong can be quickly diagnosed and treated with tried and tested medical expertise.
In most cases, people recover and continue to live full and active lives.
But, for some people, being struck with a rare disease can lead to misunderstanding, misdiagnosis and very painful medical treatment.
Living with a rare disease is an incredibly difficult ordeal.
About 300,000 people in Scotland are diagnosed with rare diseases and almost a third of sufferers will die before their fifth birthday – so an ordeal can become a tragedy, too....Read More
Usually, whatever is wrong can be quickly diagnosed and treated with tried and tested medical expertise.
In most cases, people recover and continue to live full and active lives.
But, for some people, being struck with a rare disease can lead to misunderstanding, misdiagnosis and very painful medical treatment.
Living with a rare disease is an incredibly difficult ordeal.
About 300,000 people in Scotland are diagnosed with rare diseases and almost a third of sufferers will die before their fifth birthday – so an ordeal can become a tragedy, too....Read More
